case study

Understanding the Patient Experience in Myelodysplastic Syndrome (MDS)

February 20, 2025

Bridging Gaps in MDS Care: Insights into Patient and Physician Perspectives

Discover how Inspire’s research uncovered critical opportunities to improve communication, treatment goals, and quality of life for MDS patients.

Effective communication between patients and physicians is essential for improving outcomes in myelodysplastic syndrome (MDS). Inspire’s case study, Understanding the Patient Experience in Myelodysplastic Syndrome, highlights how Inspire’s research identified gaps in care and provided actionable insights to enhance the physician-patient relationship.

In this case study, you’ll learn:

  • How Inspire’s online survey of patients and caregivers in the Leukemia Support Community captured patient-reported insights into symptoms, side effects, and quality-of-life impacts.

  • The disconnect between patient desires (e.g., slowing disease progression) and physician assumptions (e.g., symptom management), and how this misalignment affects care.

  • The critical role of patient education in reducing anxiety and fostering better decision-making.

  • How Inspire’s findings revealed opportunities to improve communication around treatment goals, disease progression, and clinical trial options.

Discover how Inspire’s insights can help bridge communication gaps and improve care for MDS patients.

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