Inspire Research
Peer-Reviewed Publications
Explore Inspire’s library of published research grounded in real-world evidence, patient-reported outcomes, and health data science.
Our work has contributed to dozens of peer-reviewed journals and scientific posters—spanning rare disease, oncology, neurology, and beyond. Collaborating with global partners, advocacy groups, and regulatory bodies, Inspire’s publications provide insights into patient voice, clinical trial innovation, and health outcomes research.
2025 Publications
2025
ProofPilot and Inspire Partner to Enhance Clinical Trial Participation
A strategic collaboration between ProofPilot and Inspire aims to boost patient engagement and participation in clinical trials, leveraging digital platforms to streamline recruitment and improve patient experiences.
2024 Publications
2024
Understanding Treatment Decisions in Multiple Myeloma
Explores the perspectives of patients, caregivers, and physicians in treatment choices for multiple myeloma.
2024
Myasthenia Gravis: Patient and Care Partner Insights
A qualitative study capturing treatment preferences and experiences of those affected by myasthenia gravis.
2024
Patient Journeys in CIDP and MMN
Quantitative analysis of patient experiences with Chronic Inflammatory Demyelinating Polyneuropathy and Multifocal Motor Neuropathy.
2024
Assessing Sexual Health in Partners of Prostate Cancer Patients
Development and validation of a survey focusing on sexual health concerns among female partners.
2024
Chronic Lymphocytic Leukemia: Patient Perspectives and Healthcare Utilization
Combines patient insights with treatment and resource utilization data in CLL.
2024
Short Bowel Syndrome Experiences via Online Communities
A mixed-method study leveraging online platforms to understand patient experiences with Short Bowel Syndrome.
2024
Identifying Anhedonia Through Patient Voices
Utilizes patient narratives to identify and describe experiences of anhedonia.
2023 Publications
2023
Insights into Rare Neuromuscular Diseases
A collaborative study with Takeda Pharmaceuticals shedding light on rare neuromuscular conditions.
2023
Real-World Evidence on Peripheral Neuropathy
Findings from a study presented at ISPOR 2023 focusing on rare forms of peripheral neuropathy.
2023
Understanding Short Bowel Syndrome Through Longitudinal Data
A novel patient-centered study analyzing long-term data on Short Bowel Syndrome in the U.S.
2022 Publications
2022
Myelodysplastic Syndrome: Patient and Caregiver Insights
Explores the disease burden of Myelodysplastic Syndrome from both patient and caregiver perspectives.
2022
COVID-19 Vaccine Hesitancy Among High-Risk Groups
A cross-sectional survey examining vaccine acceptance in individuals with cancer, autoimmune diseases, or other serious conditions.
2021 Publications
2021
Social Media as a Tool for Gauging Patient and Caregiver Sentiments
Analyzes how social media platforms can reflect patient and caregiver experiences and concerns.
2020 Publications
2020
Exploring Sleep Disruptions in Prostate Cancer Patients
Analyzes how prostate cancer affects sleep patterns, utilizing data from an online health community.
2020
Leveraging Social Networks to Identify Rare Lung Cancer Patients
Details Pfizer’s approach in using health social networks to find patients with rare lung cancer genetic variants.
2019 Publications
2019
Statins and Cognitive Function: Patient Perspectives
Qualitative analysis of online communications regarding statins, memory, and cognition.
2019
Analyzing Online Comments for Drug Safety Insights
Assessment of public and patient comments in social media and FDA archival data for pharmacovigilance.
2019
Impact of 'Spin' in Health News on Patient Interpretation
Evaluates how ‘spin’ in health news stories affects patients’ and caregivers’ understanding of treatment benefits.
2019
Detecting Adverse Drug Reactions via Social Health Networks
Introduces a natural language processing pipeline for early detection of adverse drug reactions in social health networks.
2018 Publications
2018
What Patients Seek When Choosing Cancer Surgery Hospitals
Investigates the information patients prioritize when selecting hospitals for cancer surgery.
2018
Using Deep Learning to Detect Chemotherapy Skin Reactions
Applies deep learning techniques to identify chemotherapeutic skin adverse reactions in social health networks.
2017 Publications
2017
Enhancing Cardiac Safety Monitoring through Social Listening
Discusses the potential of social listening in monitoring cardiac safety, based on proceedings from a collaborative think tank.