Revolutionizing Rare Disease Research: Inspire’s Integrated Real-World Data Approach
Discover how Inspire’s comprehensive dataset for rare neuromuscular disorders is advancing research and improving patient outcomes.
Rare diseases often lack the robust datasets needed to study patient journeys and treatment outcomes effectively. Inspire’s case study, Transforming Rare Disease Research with Real-World Data, highlights how Inspire built a fully integrated dataset for rare neuromuscular disorders, enabling groundbreaking research and evidence generation.
In this case study, you’ll learn:
How Inspire leveraged its platform of over 9,000 rare disease patients to capture seven years of retrospective health data and prospectively collect patient-reported outcomes (PROM) and patient experience data (PED).
The innovative methods used to integrate structured and unstructured data, including medical and pharmacy claims, for nuanced analysis.
How this dataset supports deep analysis of treatment patterns, healthcare resource utilization, and patient outcomes.
The benefits for clients, including streamlined data collection, enhanced evidence generation, and improved marketing access strategies.
Discover how Inspire’s real-world data solutions can transform your rare disease research and drive better patient outcomes.