Episode Summary
In this inspiring episode of Beyond the Diagnosis, Kimberly Richardson—founder of the Black Cancer Collaborative and renowned patient advocate—joins us to discuss the importance of self-advocacy and health equity in clinical research. Drawing from her personal cancer journey and advocacy work, Kimberly shares how patients—especially from marginalized communities—can reclaim agency and become proactive participants in their healthcare journey. From understanding clinical trials to forming direct connections with Principal Investigators, Kimberly provides a powerful roadmap to participation and empowerment.
Whether you’re a patient, caregiver, or healthcare professional, this conversation offers invaluable insights into supporting patient voice and breaking down barriers in clinical research.
Key Takeaways
Self-Advocacy Matters: Patients can and should play an active role in treatment decisions and clinical research involvement.
Educate Yourself on Clinical Trials: Understanding trial phases, eligibility, and your rights is key to empowerment.
Talk to the Principal Investigator (PI): Making a direct connection with the lead researcher can clarify the process and build trust.
Overcome Barriers to Participation: Fear, language, access, and lack of information often prevent trial participation—Kimberly offers strategies to overcome them.
Equity in Research Is Possible: Diverse participation leads to better science—support structures must evolve to meet underrepresented patients where they are.