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Beyond Data Points: What 1.5 Billion Patient-Generated Words Can Tell You

June 25, 2025

When it comes to understanding the patient experience, structured data can only take you so far. Claims data tells you what was billed. EHRs tell you what was documented. But neither tells you what was felt.

That’s where Inspire comes in.

With more than 1.5 billion words written by patients and caregivers in our communities, we offer access to something few others can: unedited, unfiltered, real-world conversations about living with illness.

These aren’t short survey responses or cherry-picked anecdotes. They’re in-depth discussions that span symptom tracking, treatment decisions, emotional responses, comorbid conditions, switching behaviors, financial strain, family dynamics—and more.

And when you step back and look at these conversations at scale, a new kind of dataset emerges: one that’s searchable, segmentable, longitudinal, and alive.

So, what can 1.5 billion patient-generated words really tell you?

  • What the clinical data misses.

    Like why patients stop taking a drug before speaking to their doctor—or why they never start.
  • Where the unmet needs really are.

    Not the ones inferred from trial dropouts or prescription gaps, but the ones patients explicitly name.
  • How treatment perceptions evolve.

    Inspire captures how sentiment shifts over time, by disease stage, side effect severity, or even news events.
  • What questions patients ask when they’re not in front of a clinician.

    Questions that expose education gaps, misinformation risks, and moments of doubt that shape behavior.
  • Which voices are being left out of traditional datasets.

    Including underserved populations, those managing rare diseases, and individuals navigating multiple conditions.

 

“It’s not just more data. It’s better context.”

It’s not just more data. It’s better context.

These conversations aren’t replacements for RWD. They’re the missing layer. They give meaning to utilization patterns. They explain outcomes. They highlight lived realities that claims and clinical notes never show.

When linked with EHRs, claims, or PROs, these patient voices become a powerful accelerant for evidence generation, message testing, protocol design, and post-market research.

In a world demanding more human-centered science, this is the closest thing we have to hearing directly from the people your data represents.

 

Want to know what 1.5 billion patient words can tell you about your brand, your protocol, or your study population?

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