Doubling the TSC Community: Inspire Drives Rare Disease Research and Engagement
Discover how Inspire expanded the Tuberous Sclerosis Complex (TSC) community to over 8,700 members, enabling groundbreaking research and engagement initiatives.
Expanding and engaging rare disease communities is essential for advancing research and improving patient outcomes. Inspire’s case study, Doubling the TSC Community: Driving Rare Disease Research and Engagement with Inspire, highlights how Inspire partnered with a client to double the size of the Tuberous Sclerosis Complex (TSC) community and support critical research initiatives.
In this case study, you’ll learn:
How Inspire doubled the TSC community to over 8,700 global members within three years, creating a robust platform for research and engagement.
The role of data integration, including 213,703 prescription claims and 128,852 medical claims, in supporting comprehensive research.
How Inspire activated patients for qualitative and quantitative studies, patient journey research, and real-world evidence (RWE) studies.
Why this expanded community lays the groundwork for future branded advertising and deeper patient engagement.
Discover how Inspire’s strategies can help grow and engage rare disease communities to drive meaningful research and patient outcomes.