In a joint effort with the Interstitial Cystitis Association, Inspire analyzed over 3,200 member-generated posts to explore symptom flare triggers for individuals with IC/BPS. The study revealed diet as the most frequently cited cause—accounting for 32% of all flares.
Through Inspire’s Real-World Voice™ methodology, the study identified firsthand challenges in managing dietary triggers and illustrated the emotional, behavioral, and financial burden patients face navigating their condition without formal clinical guidance.
Case Study Highlights Include:
Patient-Reported Flare Triggers
Using unstructured community data, Inspire categorized 17 potential symptom triggers. Diet far outpaced others, confirming its central role in flare events.Behavioral Impact of Dietary Triggers
Patients described in detail how they adapt—including eliminating specific foods, relying on specific brands, skipping meals, and enduring financial strain to avoid flares.Call for Clinical Relevance
Patients consistently expressed a lack of professional support for managing dietary triggers. The study recommends clinicians routinely address diet in IC/BPS care plans.
This case study is a must-read for clinicians, chronic pain researchers, and digital health teams exploring how unfiltered patient data can inform condition management strategies and improve quality of life for underserved populations.