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Inspire to host industry webinar on real-world evidence in rare disease on October 12

Join Inspire’s webinar, Bridging the Gap: Strategies for Patient-Centered Real-World Evidence in Rare Diseases, on October 12 at 11 a.m. ET. Hosted by Richard Tsai, MS, Senior VP of Real-World Evidence, the event features Takeda experts Megan Gower, PharmD, and Edward Chou, PhD. Explore challenges and strategies for leveraging patient-centered RWE to enhance drug development and rare disease research.

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New Inspire study sheds light on short bowel syndrome through real-world data

Inspire’s latest study, presented at ICPE 2023, sheds light on the diagnostic journeys, treatment patterns, and healthcare utilization of short bowel syndrome (SBS) patients. By linking patient data with HIPAA-compliant medical and pharmacy claims, the study reveals prolonged reliance on parenteral nutrition and significant out-of-pocket costs. Insights from Inspire’s online community further emphasize the financial and quality-of-life impacts of SBS, providing valuable context for understanding patient needs and advancing care solutions.

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Inspire announces partnership with the Vasculitis Foundation

Inspire and the Vasculitis Foundation have joined forces to launch a dedicated online community for individuals affected by vasculitis and their care partners. This partnership aims to provide support, resources, and a space for shared experiences while raising awareness of this rare autoimmune disease.

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Inspire to present findings of real-world evidence study on rare form of peripheral neuropathy at ISPOR 2023

Inspire unveiled findings from a groundbreaking study on chronic inflammatory demyelinating polyneuropathy (CIDP) at ISPOR 2023. Using Inspire RWE Solutions to link patient-generated data with claims, the study revealed diagnostic delays, significant healthcare utilization, and key patient insights, highlighting the importance of real-world evidence in understanding rare diseases.

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